Titre :
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The role of power, process, and relationships in participatory research for statewide HIV/AIDS programming. (2006)
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Auteurs :
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CHUNG (Kimberly) : USA. Department of Community Agriculture Recreation and Resource Studies. East Lansing. MI. ;
LOUNSBURY (David-W) : USA. Department of Psychiatry and Behavioral Sciences. Memorial Sloan-Kettering Cancer Center. NY.
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Type de document :
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Article
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Dans :
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Social science and medicine (vol. 63, n° 8, 2006)
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Pagination :
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2129-2140
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Langues:
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Anglais
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Mots-clés :
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Sida
;
Virose
;
Infection
;
Homme
;
Participation communautaire
;
Communauté
;
Soins
;
Projet loi
;
Etats Unis
;
Amérique
;
Immunopathologie
;
Amérique du Nord
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Résumé :
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[BDSP. Notice produite par INIST-CNRS tuuR0x3p. Diffusion soumise à autorisation]. This paper presents a case study of a participatory process that was used to understand the needs of persons living with HIV/AIDS in a US state. The case illustrates that participation in a community-based research project is a dynamic phenomenon that must be negotiated among an evolving web of roles and relationships. Using a continuum to model the multiple modes of community participation, we follow the changing nature of participation over the course of a single project. Our analysis illustrates the different levels of participation given by the continuum as well as the dynamic nature of participation. A shared understanding of participation evolves as the roles and relationships of those involved are negotiated and renegotiated. However, lack of reflection over power differentials can lead to disempowering outcomes even after achieving a seemingly participatory process. The case reveals that failing to resolve divergent assumptions about power and purpose can lead to fissures that are difficult to overcome.
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