Titre :
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Perspectives on use and protection of genetic information in work settings : results of a preliminary study. (2005)
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Auteurs :
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Laura-Weiss ROBERTS ;
GEPPERT (Cynthia-Ma) : USA. New Mexico Veterans'Affairs Medical Center. ;
Katherine-Agreen HAMMOND ;
Brian-B ROBERTS ;
Melinda ROGERS ;
Julienne SMRCKA ;
Teddy-D WARNER ;
Medical College of Wisconsin. Department of Psychiatry and Behaviorl Medicine. Milwaukee. WI. USA ;
University of New Mexico School of Medicine. USA
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Type de document :
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Article
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Dans :
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Social science and medicine (vol. 60, n° 8, 2005)
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Pagination :
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1855-1858
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Langues:
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Anglais
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Mots-clés :
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Génétique
;
Confidentialité
;
Ethique
;
Etats Unis
;
Amérique
;
Homme
;
Amérique du Nord
;
Droits fondamentaux
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Résumé :
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[BDSP. Notice produite par INIST-CNRS R0x02Bf7. Diffusion soumise à autorisation]. The societal use of genetic information raises ethical concerns, and the views of working persons regarding genetic information have received little attention. We performed an empirical project to characterize perspectives of 63 employees at two sites who expressed strong interest in learning about and protecting their personal genetic information. Genetic data were seen as more sensitive than other health data, and disclosure of genetic susceptibility was perceived as having negative consequences. This study suggests the value of exploring the perspectives of key stakeholders most directly affected by genetic applications across diverse societal settings.
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