Résumé :
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[BDSP. Notice produite par INIST R0x5FgQr. Diffusion soumise à autorisation]. Background In cancer registration, data cleaning (i.e. amendments made by data users to datasets released by registries) is potentially informative for quality assurance, but generally underreported. Aim To assess the scope for learning lessons about cancer registration quality assurance from a data user (using skin cancer as the example). Methods The main design features were : (i) A descriptive study identifying, qualitatively and quantitatively, the breadth, depth, and impact of quality assurance issues raised by a user cleaning Merseyside and Cheshire Cancer Registry skin cancer data. Errors were rectified and pitfalls for interpretation were identified. (ii) A nested validation of morphology and site coding on random samples of cutaneous malignant melanomas, basal cell carcinomas (BCC), and squamous cell carcinomas. The 33 132-record dataset comprised : all registered skin lesions, except metastases ; most recorded variables (about patient, lesion, treatment, outcome) ; for Merseyside and Cheshire residents diagnosed 1970-1991. Results (i) Ineligible cases represented 0.3% (97/33 132), and were detected best by morphology checks. Most quality assurance issues identified related to local custom and practice, staff training, and computerization, being particularly illustrated by problematic BCC registration practice (e.g. records written over unchallenged by range checks ; and idiosyncratic use of variables). (...)
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