| Titre : | Cancer disparities research partnership in lakota country : Clinical trials, patient services, and community education for the oglala, rosebud, and cheyenne river sioux tribes. (2005) |
| Auteurs : | ROGERS (Deborah) : USA. Rapid City Regional Hospital. Rapid City. SD. ; PETEREIT (Daniel-G) : USA. John T Vucuresich Cancer Care Institute. Rapid City Regional Hospital. Rapid City. SD. |
| Type de document : | Article |
| Dans : | American journal of public health (vol. 95, n° 12, 2005) |
| Pagination : | 2129-2132 |
| Langues: | Anglais |
| Mots-clés : | Cancer ; Pays ; Education thérapeutique du patient ; Education santé ; Malade ; Communauté ; Partenariat |
| Résumé : | [BDSP. Notice produite par INIST-CNRS lY14R0x0. Diffusion soumise à autorisation]. Native Americans served by the Aberdeen, Billings, and Bemidji areas of the Indian Health Service (IHS) have a cancer mortality rate approximately 40% higher than that of the overall US population. The National Cancer Institute has funded Rapid City Regional Hospital to provide clinical trials, behavioral research, a genetic protocol, patient navigator services (assisting patients with health care coordination and financial issues and helping them to understand their options), and community education for members of 3 western South Dakota tribes. Challenges faced by the project included obtaining multiple approvals from 3 tribes, 4 IHS facilities, and 5 institutional review boards ; travel distances ; lack of screening ; red tape of referrals : and refusal by some payers to cover clinical trials. Building trust through ongoing communication and community presence is key to a successful project. |
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