Titre :
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"They should take time" : Disclosure of clinical trial results as part of a social relationship. (2012)
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Auteurs :
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Aline Sarradon-Eck ;
Alice Desclaux ;
GENRE (Dominique) : FRA. Institut Paoli Calmettes et Crcm-Umr 891. Marseille. ;
Claire JULIAN-REYNIER ;
MANCINI (Julien) : FRA. Lertim (Ea3283). Université Aix-Marseille Ii. ;
SAKOYAN (Juliette) : FRA. Ehess. Centre Norbert Elias. Marseille. ;
Umr 912 Inserm. Ird. Université Aix-Marseille. Se4S Sciences Economiques et Sociales Systèmes de Santé Sociétés. Marseille. FRA
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Type de document :
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Article
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Dans :
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Social science and medicine (vol. 75, n° 5, 2012)
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Pagination :
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873-882
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Langues:
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Anglais
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Mots-clés :
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Cancer
;
Essai thérapeutique
;
Résultat
;
Europe sociale
;
France
;
Sein
;
Relation médecin malade
;
Thérapeutique
;
Homme
;
Médicament anticancéreux
;
Europe
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Résumé :
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[BDSP. Notice produite par INIST-CNRS nqCpFR0x. Diffusion soumise à autorisation]. Disclosing overall scientific results to clinical trial participants has become an ethical obligation. Here we studied how participants understand these results in view of their experience of clinical trials and illness in general and what modes of disclosure they preferred. Interviews were conducted with 29 breast cancer patients in France during 2009, using an in-depth qualitative approach. The findings obtained show that the "results" of research are understood quite differently by various patients depending on their expectations about clinical trials. Most of the women interviewed expected to receive personally tailored results at an individual encounter with their own clinical oncologist. Their preferred mode of disclosure was a consultation with their doctors because personal encounters promote mutual recognition and set up a symbolic process of exchange. The results of this study show that medical interventions should not be regarded solely from the technical point of view, but also in terms of the social relationships involved.
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