Questioning the Consensus : Managing Carrier Statu... Catalogue en ligne

Titre :	Questioning the Consensus : Managing Carrier Status Results Generated by Newborn Screening. (2009)
Auteurs :	Fiona-Alice MILLER ; Robin-Z HAYEEMS ; Jason-Scott Robert ; Department of Health Policy Management and Evaluation. University of Toronto. Ontario. CAN
Type de document :	Article
Dans :	American journal of public health (vol. 99, n° 2, 2009)
Pagination :	210-215
Langues:	Anglais
Mots-clés :	Porteur ; Résultat ; Nouveau né ; Dépistage ; Homme
Résumé :	[BDSP. Notice produite par INIST-CNRS 9GqlR0xF. Diffusion soumise à autorisation]. An apparent consensus governs the management of carrier status information generated incidentally through newborn screening : results cannot be withheld from parents. This normative stance encodes the focus on autonomy and distaste for paternalism that characterize the principles of clinical bio-ethics. However, newborn screening is a classic public health intervention in which paternalism may trump autonomy and through which parents are-in effect - required to receive carrier information. In truth, the disposition of carrier results generates competing moral infringements : to with old information or require ist possession. Resolving this dilemma demands consideration of a distinctive body of public health ethics to highlight the moral imperatives associated with the exercise of collective authority in the pursuit of public health benefits.

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