| Titre : | Validation of the EORTC QLQ-C30 quality of life questionnaire through combined qualitative and quantitative assessment of patient-observer agreement. (1997) |
| Auteurs : | M. GROENVOLD ; N.K. Aaronson ; M.C. KLEE ; M.A.G. SPRANGERS |
| Type de document : | Article |
| Dans : | Journal of clinical epidemiology (vol. 50, n° 4, 1997) |
| Pagination : | 441-450 |
| Langues: | Anglais |
| Mots-clés : | Questionnaire ; Qualité vie ; Etat santé ; Homme ; Cancer ; Autoévaluation ; Malade ; Psychométrie |
| Résumé : | [BDSP. Notice produite par INIST XA8SoR0x. Diffusion soumise à autorisation]. Patient-rated questionnaires are increasingly used to assess health-related quality of life. We studied one aspect of the validity of such measures that has rarely been investigated : do patients interpret questionnaires in the same way as do the researchers reporting the results ? If not, there may be a problem. We employed the EORTC QLQ-C30 quality-of-life questionnaire to study 95 cancer patients and measured the agreement between (1) the patient's self-assessment and (2) an observer's rating of the patient's open-ended responses to the same questionnaire administered as an interview. The observer made qualitative recordings describing potential misinterpretations. The agreement between patients'and observers'ratings was high (median kappa=0.85, range 0.49-1.00). The qualitative data revealed a few minor validity problems. One of these, selective reporting, may lead to systematic errors : some patients reported only what they considered "relevant" symptoms. The combination of quantitative and qualitative methods proved useful for questionnaire validation. |
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