| Titre : | Understanding Community-Based Processes for Research Ethics Review : A National Study. (2011) |
| Auteurs : | Nancy SHORE ; Andrea-Corage BADEN ; BRAZAUSKAS (Ruta) : USA. Division of Biostatistics. Institute for Health and Society. Medical College of Wisconsin. Milwaukee. WI. ; Kirsten CYR ; DREW (Elaine) : USA. Department of Family and Community Medicine. Medical College of Wisconsin. Milwaukee. ; Lisa MOY ; Sarena-D SEIFER ; Jocelyn ULEVICUS ; Kristine-A WONG ; Community-Campus Partnerships for Health. Seattle. WA. USA ; Westbrook College of Health Professions. School of Social Work. University of New England. Portland. ME. USA |
| Type de document : | Article |
| Dans : | American journal of public health (vol. 101, 2011) |
| Pagination : | S359-S364 |
| Langues: | Anglais |
| Mots-clés : | Connaissance ; Communauté ; Ethique |
| Résumé : | [BDSP. Notice produite par INIST-CNRS qBR0xqDI. Diffusion soumise à autorisation]. Objectives. Institutional review boards (IRBs), designed to protect individual study participants, do not routinely assess community consent, risks, and benefits. Community groups are establishing ethics review processes to determine whether and how research is conducted in their communities. To strengthen the ethics review of community-engaged research, we sought to identify and describe these processes. Methods. In 2008 we conducted an online survey of US-based community groups and community-institutional partnerships involved in human-participants research. We identified 109 respondents who met participation criteria and had ethics review processes in place. Results. The respondents'processes mainly functioned through community-institutional partnerships, community-based organizations, community health centers, and tribal organizations. These processes had been created primarily to ensure that the involved communities were engaged in and directly benefited from research and were protected from research harms. The primary process benefits included giving communities a voice in determining which studies were conducted and ensuring that studies were relevant and feasible, and that they built community capacity. The primary process challenges were the time and resources needed to support the process. Conclusions. Community-based processes for ethics review consider community-level ethical issues that institution-based IRBs often do not. |
Service Documentation EHESP
Me connecter
PORTAIL DOCUMENTAIRE
École des hautes études en santé publique
Catalogue
Multi-bases
Accueil
Sélection de la langue
Adresse
Service Documentation EHESPBibliothèque Rennes Avenue du Professeur Léon Bernard – CS 74312 – 35043 Rennes Cedex Bibliothèque MSSH Paris 20 avenue George Sand - 93210 La Plaine Saint-Denis
France
Bibliothèque Rennes : 02 99 02 29 50 Bibliothèque MSSH Paris : 02 99 02 24 50
contact